Since 2009, we have each written blogs about living in the aftermath of infant surgery. Both of us had life-saving infant surgeries for the repair of pyloric stenosis, a stomach blockage, Fred’s at ten days old in the Netherlands in 1945 and Wendy’s at twenty-six days old in the United States in 1952. Our meeting many decades later was profoundly healing and life-changing, for our connection brought us out of isolation and into countless conversations in which we were able to understand our lives more deeply, given our shared beginnings in trauma.
Fred’s blog Surviving Infant Surgery focuses more on the physical aspects of pyloric stenosis, specifically helping current parents and families of PS babies negotiate their journeys, and adult survivors of PS who still suffer from physical problems, such as pain from adhesions. Wendy’s blog, which was first named myincision and then morphed into RestoryYourLife, focuses on the psychological and somatic effects of infant surgery, especially surgery without anesthesia, and the impact early trauma has had on our lives.
Why have we now come together to share our blog posts and information in one place, Pyloric Stenosis: What we wish we’d Known?
We want to provide a one-stop-shop model, if you will, where resources from both blogs are made available. This consolidation insures that material is not repeated. It also provides a new format whereby previously archived material is more accessible through an index system. Though the site targets Pyloric Stenosis survivors, all survivors of infant surgery or early invasive medical procedures will find relevant material on this blog.
Welcome to these pages! We want you to know that you are not alone in your suffering, your confusion, your questions and your challenges. We hope that our blog will clarify issues and worries that may have nagged at you for decades. Please join us on our journey to understand our infant surgeries and the effects they’ve had on our lives as we grew up and matured. Let’s explore the ways we can join as a community to nourish and help one another find relief and comfort, given what we’ve suffered. We look forward to meeting you, perhaps forming relationships, hearing your insights and concerns, learning from one another and walking together on this road to greater awareness, compassion and autonomy.