This Blog is for people troubled because of infant pyloric stenosis – their baby’s or their own.
For many people, pyloric stenosis (“PS”) is something they’ve never heard of, even though all of us probably know several people who have had it.
Most people who have experienced PS (either as a parent or close family member, or personally) have been able to put what they often say was their “most traumatic experience ever” behind them. I suspect and hope that these folk are a “silent majority”.
However, there are many (I believe quite a sizeable minority) who are or have been deeply troubled by PS, either as the parents of a PS baby, or as a “survivor”. Continue reading “Building greater awareness”
Written by Wendy Patrice Williams on November 2, 2016
As adult survivors of infant surgery without anesthesia, it’s difficult to be angry about what happened to us early on. We feel grateful for having been helped and saved, and we should. The surgeons, the nurses, the staff, our parents, and families leaned in and lent a hand. We survived because of them. What’s not to be grateful for? Continue reading “To Be or Not Be …….. Grateful”
Most General Practitioners (GPs) will reject any link out of hand. Some GPs have even been known to ask their patient (or client) what “PS” (pyloric stenosis) is.
We can be sure that every medical textbook and training includes at least a page or part of a lecture on PS, which is the most common reason for non-elective surgery on infants in their first months and years. But who can blame a medical student for not remembering everything they are told and read over six or more packed years? Let alone what is currently known about a condition most GPs will encounter only rarely? Continue reading “Is there a link between infant Pyloric Stenosis and later abdominal trouble?”
Last December my wife and I welcomed a friend and film-maker from the US. I worked with him on a documentary he is making on a subject of common interest to all of us – the effects of infant surgery done when it was widely believed (esp. pre-1990) in the medical world that babies don’t feel or remember pain. Yikes! Yes, really.
My friend has interviewed several of us who had infant surgery in the “dark ages” and he is now recording interviews with several professionals who have written about or provide therapy for people affected by pre-conscious but unremembered (“somatic memory”) trauma.
We hope the result will be available Continue reading “After infant surgery – untangling the emotional baggage”